Showing posts from May, 2012

Neuromyelitis Optica

I saw my neurologist yesterday for the results of my spinal MRI.  Not only do I have a lesion on my spinal cord (damn!) it is a very looong lesion...from C2 to C6.  My first reaction was: damn...I have a lesion, my second reaction was oh, well, at least its only one?!  Ignorance is bliss, isn't it?  Because apparently the doctor suspects I may have a sub type of MS OR an entirely different disease (depending on which researcher you talk to)????  What the hell????  So, she starts talking about NMO (neuromyelitis optica) and how she wants me to have a blood test to determine if I have it.

Let me just say, I had never heard of NMO until that moment, and the way she was describing it (in a clinical kind of way) made me think it wasn't so bad.  She was talking about how the treatment is different for NMO than MS (NMO doesn't respond well to the disease modifying drugs) and I was thinking 'well, at least there is a treatment'.

I should have realized there was more to th…