Showing posts from June, 2010

The Strength of Community

When my good friend, Brooke, found out that i was going to Germany to pursue the Liberation procedure, she immediately insisted she was going to do a fundraiser for me.  I didn't encourage nor did I discourage her...I remained relatively neutral.  Because, the fact is, I felt a little weird that people would fundraise for me!?!  I mean, there are a lot of other people who are probably much more worthy (and needy) of fundraising than me.  I kept thinking, "What makes me more special than someone else?"...

I guess being a teacher in the same district for the past 15 years has its advantages. You get to know a lot of people.  And I have been fortunate to work with quite a few great people over my teaching career.  And if you know anything about the nature of teachers, you'll know we love to get together and have a good time.  which doesn't happen very often on a district wide basis. So a Burger and Beverage night, on a Friday, near the end of the school year turns o…

Prevention of Restenosis - the Plan

So, I just got back from my appointment with my Naturopath with a plan to prevent restenosis when (I'm being positive, so no 'ifs') I get liberated.  She did some research and found some interesting correlations.  I'm going to share them with you because I think they are interesting too.
I'm going to just copy what she had written for me :)

*There is an association between the presence of H.pylori infection in the stomach (this is the bacteria that causes ulcers), elevated serum homocysteine, and elevated CRP (some kind of protein) and an increased risk of restenosis.  She recommends that I be tested for the presence of all three and then will treat accordingly.  So the tests are:
-H.pylori Breath Test  - serum C-reactive protein (CRP)-serum homocysteine*Supplementing with vitamins that lower homocysteine levels (folic acid, B12, and B6) for 6 months after angioplasty or stenting significantly decreases the risk of restenosis at the 1 year mark.She recommends that b…

The "Natur"opath of Things

Ok, so I had my appointment with my Naturopath, who just came back from Mat Leave and had no idea what I was up to (as far as CCSVI goes).  She was extremely intrigued by the entire CCSVI theory and totally supports my decision to seek treatment.  My reason for seeing her now, is to establish some sort of wholistic support for my vascular system before I embark on my liberation treatment (fingers crossed) in August.  My reasoning, as I explained it to her, was that I wanted to make my veins as strong/flexible? as possible so as to possibly avoid any restenoses..."was this possible?", I asked her.  First, she was very impressed that I was being so proactive and secondly, she would get back to me, as she did not want to suggest anything right then until she researched this CCSVI more thoroughly.  Imagine that, a doctor, albeit a Naturopath, who wants to find out more about a 'novel' theory!

So I have an appointment next week to discuss what her ideas are.  We are also …


I've been reading on various blogs and thinking a lot about expectations the last couple of days.  As a teacher, I instinctively aspire to having high expectations for myself and for my students.  I'm always encouraging students to: be the best they can be, stay positive, "you can do it" get the picture.  But with CCSVI and the liberation procedure, I'm trying to convince myself to have low expectations and I'm having a hell of a time with it!  Because the truth is, I want this to make me better!

So while I say to myself,"I'll be happy if it just stops the progression of my MS", there's a part of me...and its a big part... that really wants the fatigue to go away, the numbness to go away, the stiffness to go away, the bladder problems to disappear, etc., etc.  And all the while I'm thinking, "But, wait, this is dangerous thinking, Moni!'re setting yourself up for a potential major disappointment and how are you going…

Chilliwack Progress - Painstaking path to potential cure